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Amy F. Quincy Author/Freelance Writer

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memoir

Adventures in Misadventures

bookstore-bestsellers-16563259I’m here. I’m back I did not fall off of the face of the earth. As you might have guessed, settling into a new neighborhood, publishing a book and consistently putting out a blog post was a little too much for me. Something had to give – sorry.

It turns out that writing the book was the easy part. And it also turns out that some cover designers don’t understand the difference between a hospital wheelchair and one that’s designed to sit in every day. But I’m teaching them. And learning a lot in the process.23015

I’ve been so wrapped up in trying to get the @#$# thing out that I missed several of your good wishes and inquiries on how to purchase the book. The easiest way will be to order online from Amazon (though they’ll take their cut). That’s probably best if you don’t live in Jacksonville and I’ll post an announcement when it’s available. Otherwise, you may want to pick up a copy from me, especially if you know you’ll see me!

So to prove I haven’t been kicking back at Sun-Ray or Memorial Park with Frankie all day, I give you a piece I’m writing into the end of Misadventures of a Happy Heart: A Memoir of Life Beyond Disability. Consider it a sneak preview. Enjoy!

How To Have Your Own Misadventures

1. Don’t take things so seriously. Cultivate your sense of humor.
Learn to laugh at yourself. I don’t mean to sound like an R.E.M. song, but it’s a fact. People like to be around (and help) happy, smiling people. And let’s face it, sometimes the most humorous thing about the situation is you…if you choose to see it. You may already stick out like a sore thumb and everybody’s staring anyway – have some fun with it. It may be cliché, but laughter really is the best medicine.

2. Don’t define yourself by tragedy.
Don’t become known as “the girl in the wheelchair” or “the guy who had the skiing accident.” Make your life about something more than whatever tragic thing happened to you. Do you want to be introduced as “the divorcée” forever? Make your story about something positive, not negative. There’s power in words. If you’re constantly reliving a negative event, through words or thoughts, you’re putting that energy out into the world. Put positive out and get positive back.

3. Consider getting a dog.
I highly recommend living with an animal of some kind. It keeps you from getting lonely (if you live alone). One study showed that not only were pet owners less lonely, but they were healthier and had higher self-esteem too! Plus, owning a dog gets you outside for all those walks, rain or shine. And if you have a disability, a dog can be a great icebreaker. Many able-bodied people may stop to talk with you that normally would not have, which helps to build disability awareness. And there are so many homeless pets. Contact your local humane society, ASPCA or The National Association of Service Dogs.

4. Live in a walkable community.
If you can no longer drive, this is key to regaining your independence. Even if you still drive, life is too short to spend stressful hours in traffic. Getting out to grocery shop or run errands is good for you and allows you to meet your neighbors. And, if disabled, doing things for yourself can make you feel competent and confident!

5. Get involved. Socialize. Help others.
For me, all three of these things came together in Adaptive Sports and Recreation. Exercise is important for your physical and mental health. And most importantly, it allows you to make friends, often with people going through something similar. Call around. Your local hospital, rehab center or doctor’s office may be a good place to start. Seek out support groups. You’ll find there’s usually always someone worse off than you. Offer your assistance or be a mentor to others. You’ll find this gets you out of yourself and your own problems and reminds you to be grateful for what you have.

Imagination and Memory

Imagine for a moment, waking up in a hospital to find yourself paralyzed from head to toe, unable to move or even speak. That was the fate of Jean-Dominique Bauby, editor of French Elle, when he suffered a massive stroke that left him a victim of “locked-in syndrome” at the age of 42. He would never leave the hospital, never eat except by tube and never have a regular conversation again. And yet, it was during this time that he wrote his                                                                                            bestselling memoir, The Diving Bell                                                                                           and the Butterfly

Left with a fully functioning and brilliant mind, but able only to blink his left eyelid, he wrote and memorized entire paragraphs in his head. His speech therapist designed a system by which someone would read the alphabet and he could blink when they came to the letter he wanted. Sometimes I feel sorry for myself, pecking away with thumb and index finger at the rate of nine words a minute in the comfort of my own home. Bauby dictated an entire novel from his hospital bed, letter by painstaking letter. I think of him often.

His memoir, published in 1997, received critical acclaim and its beautiful prose is testament to the power of the human spirit. Bauby’s mind is the butterfly, taking flight from his physical body, the diving bell. A French film, directed by Julian Schnabel, followed in 2007 and was nominated for four Academy Awards in the areas of directing, cinematography, writing and editing. In the film version, the subtitled words for Bauby’s thoughts appear, “I’ve decided to stop pitying myself. Other than my eye, two things aren’t paralyzed. My imagination…and my memory. They’re the only two ways I can escape from my diving bell. I can imagine anything, anybody, anywhere.”

Bauby died of pneumonia on March 9, 1997, just two days after the publication of his memoir. This coming week, as we approach the anniversary of his death and I continue to use words to try and cultivate my own butterfly garden, I feel grateful for two things. My imagination…and my memory.

Coming Soon!

Hello friends!  I will be maintaining a weekly blog at this location, sometime after the publication of my memoir.  Be sure to check back!

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