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Amy F. Quincy Author/Freelance Writer

We Remember

It seems disrespectful to write about anything else today. We’ll all go about our business, but it will be there. The knowledge. The memory. The grief that marks any big anniversary of loss. And this is a big one. So, no funny dog story today. Today, I remember …

Exactly ten years ago, I was at a yoga teacher training. We were stretching into a pose, or breathing, or meditating. I don’t recall. What I do remember is some girl with a cell phone screaming about something her husband had just seen on the news. The students, myself included, were annoyed with her for letting her phone ring and interrupting our peace with some current event from the outside world. I didn’t pay attention to her hysterics. We broke for lunch. By the time we returned, we understood. Things would never be the same.

Blooming in 2009
Replanted in 2001

Of all of the stories told to mark the occasion in the recent weeks, I think I’ve been most touched by the “Survivor Tree.” A lone callery pear was the only tree to survive the attack. It was removed to a Bronx nursery where it was nursed back to health and returned to the World Trade Center Memorial Plaza last December. True to my optimistic nature, I embrace this story of strength, hope and renewal.

In the words of fellow yogi, Deepak Chopra, “For me and my family personally, September 11 was a reminder that life is fleeting, impermanent and uncertain. Therefore we must make use of every moment and nurture it with affection, tenderness, beauty, creativity and laughter.”

At the Movies

I love going to the movies. My “woulda-coulda-shoulda” career choice is that of film critic. I think everyone’s allowed at least one woulda-coulda-shoulda when it comes to making a living and mine is movie reviewer.

It’s perfect when you think about it. It combines my love of movies with my passion for writing, not to mention my fondness for giving others my opinion. And I could work despite my disabilities. From home. Like Roger Ebert, who still gives his thumbs up or down after a cancer battle took away his ability to speak, eat or drink. Besides, have you read some of the reviews out there?

The only problem (and it’s a big one) is I know nothing about film. Not the history of it. Not the making of it. Just the little I recall from a film appreciation class I took in college. But I do appreciate it. Every aspect of it. From the red carpet and who’s who celebrity madness to the technique and art of telling a good story on film. Which is why I like to hit the box office around once a week, depending on what’s playing.

Becoming a disabled movie-goer has its pros and cons. First on the pro side is, of course, the parking. You would think obtaining rock star status would have calmed me some, but no. I’m even worse about getting there early. My mother and I often sit in bright, empty theaters while the ushers sweep popcorn off the floor from earlier showings.  Our own personal “First Look.”

Something my mother calls a pro that I list as a con, is the discount. It’s a little known fact that a handicapped person plus one can get in for the price of one. The “assistant” gets in free. I guess the idea is that the disabled person might have wanted to go by themselves and shouldn’t have to pay double just because they visit the restroom and need help. (Me, I avoid all liquid consumption, especially the super-sized $10 sodas.)

Unfortunately, this discount is also a little known fact to virtually every theater employee with the exception of management. I can usually be found cringing as some ticket-seller requests a manager over the sound system, much to the dismay of the people in line behind us. He or she then loudly asks if “the handicapped,” i.e. me, get a discount. It’s like being at the drugstore when some loudmouthed cashier asks for a price check on your foot fungal cream.

It’s a definite con when the handicapped seats are in the very front row. No sane person wants to watch a movie like they’re watching a game of tennis just to follow an on-screen conversation. Imagine the crick in your neck!  I won’t do it.  If I’m with two people, I’ll climb the stairs, one arm wrapped around each person’s shoulders. If there’s only two of us, I’ll “butt up” (I hope that’s self-explanatory.) Another reason to get there early and avoid subjecting fellow patrons to that.

One time I climbed, with the help of my mother and a friend. My mother brought up the wheelchair, since it fit down the aisle and we could get to “prime viewing location” (the exact middle.) In an otherwise empty theater, would you believe a couple carrying snacks galore came and sat in the row directly behind us? My mother actually turned around and said. “I’m sorry, but what exactly is the thought process here?” No response. They sat there while we moved, carrying out the whole production of me transferring back into the wheelchair. I told my mom they were probably scared to move because they thought she was a serial killer.

If all else fails and I’m stuck in the first row, I’ll ask for my money back. Price check on a handicapped refund.

I Miss …

… bubble baths.  In winter, slipping into water so hot it stings your toes.

… cooking dinner.  With a glass of wine in one hand, tasting sauce with the other.

…walking the beach.  My toes sinking into the sand, the waves lapping at my legs.

… dancing.  At a club, with girlfriends, knowing some cute guy is watching.

… drive-thru’s.  Eating a taco at midnight because the mood strikes.

… high heels.  A pair of strappy, too-high-to-be-practical, great-looking shoes.

… singing.  Along with the radio, thinking I don’t sound half bad.

Please don’t feel sorry for me.  I never dwell on this stuff, except for the purposes of writing.  Missing something won’t make it so — so what’s the point?  Pity isn’t the intention of this post, gratitude is.  Be grateful for the little everyday joys in your life.  The simple pleasures.  Maybe you can’t feel your toes in the sand either, but you can do something else on my list.  The point is to find and take your blessings where you can.  As for me?  I’ve already watched a gull dipping in and out of the surf this morning.  And twice yesterday.  Last week, I saw dolphins rolling by.  How many of you can say that?  Remember, it’s the little things.

Jack of All Sports … Master of None

On Victory Lake: Photo by John Lipscomb

“So,” Ann asked me. “Which side of your body is paralyzed?”

“Neither,” I answered. I’d told her I’d had a stroke. It was a natural assumption. “But it’s the right side that …” I hesitated.

“Sucks,” she filled in.

“Well no,” I started to say. Then, “Yeah — sucks.” I smiled. I liked her. Therapists (always able-bodied) were constantly telling you not to call one side the “bad” side. Positive thinking and manifestation and all that crap. Here was a straight shooter.

Also in a wheelchair, Ann O’Brine-Satterfield founded U Can Ski 2 over 20 years ago. She’d won six national and two world championships as a disabled water skier. I’d found out about the free “learn to ski” clinic as I had most of my adaptive adventures, through the Brooks Adaptive Sports and Recreation Program.

No stranger to the program or the world of adaptive sports, the list of activities I’ve tried is long: wheelchair tennis, power soccer, rowing, surfing, snow skiing, hand cycling, bowling, billiards, aquatics, horseback riding and now water skiing. I’m bad at all of them. Or as Ann would say, I suck.

Alice Krauss, the director of the Brooks Program, initially suggested I try wheelchair tennis. I have no idea why. My coordination is so poor, I can’t even put my finger to my nose without poking myself in the eye, let alone connect a racket to a ball. In her defense, we hadn’t met yet. I’m sure I sounded quite capable over the phone. I mean, aside from the slur and all. After we’d met, she wasn’t exactly suggesting I sign up for archery. (Who would’ve thought there is adaptive archery?) I know better. I have no business anywhere near a bow and arrow.

Truthfully, I wasn’t half bad at horseback riding. I had dreams of the Paralympics before I learned the competition is in English Dressage. That means both hands hold the reins. I was riding Western with just my left hand. I’m sure they have adaptive equipment to make it work, (heck, I’ve seen a girl riding with no legs!) but I was already trekking to Georgia just to find a Western adaptive teacher. In the end, the time and expense weren’t worth it to me.

I thought I’d found my sport when I was introduced to power soccer. It doesn’t require contact of your body with the ball at all! Power wheelchairs are outfitted with metal cages and driven up and down an indoor court like bumper cars. Except players are supposed to hit the ball, not each other. I was bad at that too. My double vision got in the way.

Adaptive equipment: Photo by Alice Krauss

Yet here I was again, hanging off the back of a boat as one of the “side skiers” counted down from three for the driver. Since it was my first time, I didn’t really have to do anything.  I didn’t even have to hang on to the rope, though I can progress to that later.  The rope attached directly to the sit ski I was in. It reminded me a lot of snow skiing, where even the slightest turn of your head guides the ski.

I’m not sure why I keep trying all these sports. Maybe, I’m more competitive than I like to admit. Maybe, I’m looking for something physical to be good at again. Or maybe, I like being part of a group that redefines what it means to be an athlete. Either way, time spent dreaming about a new goal, even if it’s just an hour, can’t be time misspent. Team USA Water Ski, here I come.

In Praise of Rejection

I recently received a rejection letter.  Well, letter is an overstatement.  I received a rejection slip.  It wasn’t even a full sheet of 8 1/2 x 11 paper.  It was half that.  A blank had been filled in with my name.  “Dear Blank, we’re sorry we can’t use your work at this time, but thank you for letting us consider it.”  I was thrilled.

You see, getting an actual response has become a rarity.  Stephen King used to save rejections on a nail in his bedroom.  Lots of writers do.  In my fantasies of living the writer’s life, an entire wall of my office was wallpapered in rejection slips — the sign of a working writer.  But now, many publishers are so inundated with unsolicited work they don’t even bother to say, “Thanks.  But no thanks.”  Nowadays, no news isn’t good news — bad news is.

So to me, no response means no.  And you better believe, I’m keeping track.  Today’s writers may not have the form-lettered proof, but rejection still reigns.  Famous authors seem to know precisely how many times their manuscript was rejected before being accepted.  J.K. Rowling submitted Harry Potter to 12 publishing houses before it came out in print.  18 publishers thought Richard Bach’s book about a seagull was absurd (Jonathan Livingston Seagull.)  Even John Grisham, who seems to have mastered the art of selling novels (and movie rights,) had his first book, A Time to Kill, rejected 28 times.

The Help the movie came out last week.  My expectations are low.  Aside from a few notable exceptions (The Godfather, Gone With the Wind, The Shawshank Redemption, to name a few,) the book is always better than the movie.  The Help author, Kathryn Stockett, was turned down 60 times.  60.  After rejection number 40, she started lying to her friends, even her husband.  She was rewriting and resubmitting on the sly.  She felt ashamed for not letting it go.

As persistant as that sounds, Robert Pirsig racked up twice as many rejections for Zen and the Art of Motorcycle Maintenance.  Imagine continuing after being turned down 121 times.  Consider that Madeleine L’Engle received 26 rejections before A Wrinkle in Time was published and won The Newbery Medal.  Or that Jack Canfield and Mark Victor Hansen were rejected again and again when submitting their idea for Chicken Soup for the Soul.   I’ve submitted to the series twice.  The first time, I received a postcard telling me publication of a particular title was suspended until a future date.  The second time, I never heard back.  I’ll take that as no.  Both times.

So, how do you keep going?  Kathryn Stockett says this.  “I can’t tell you how to succeed.  But I can tell you how not to: Give in to the shame of being rejected and put your manuscript — or painting, song, voice, dance moves, [insert passion here] — in the coffin that is your bedside drawer and close it for good.  I guarantee you that it won’t take you anywhere.  Or you can do what this writer did: Give in to your obsession instead.”

Truth in Advertising

*Reader discretion is advised. 

“It’s the cradle of life.  It’s the center of civilization.  Men have fought for it.  Even died for it.”  I have to admit.  The television had my attention.  On screen, swords and horses in medieval garb clashed .  It looked like the trailer for some epic period piece I didn’t want to miss.  And then the announcer said it.  “Hail to the V.”  It was a commercial for … well … umm … a feminine product.  Excuse me?  Did I hear correctly?  Did she just say “Hail to the V?!”

What’s happening here?  I’m all for acknowledging my feminine power, but I don’t need it hailed on national television!  I was complaining about this not-so-recent trend to my hairdresser.  Advertisers seem to be letting it all hang out.  I finally got used to all the condom and erectile dysfunction ads when there seemed to be a whole new slew of offenders.  She agreed.  She can’t stand the colorful bears with all the pieces left behind.  And the slogan.  Enjoy the go?  I detest watching the cartoon babies scrunch up their faces in concentration while competing in some kind of crapping contest set to the music “Whoop, (or is it poop?) There It Is.”  What the hell goes on in there that diapers need to come with blowout protection?  

And then there’s this candor: “It’s time to get real about what happens in the bathroom.  And start talking about what you really want from your toilet paper.”  But I don’t wanna!  Maybe I’m a fuddy-duddy, but I’m sure I’m not alone in this.  It must be real embarrassing to watch T.V. with your kids nowadays.  Imagine trying to explain why the couple in bed are so exhausted in a particular “yours and mine” commercial.  (And before you say I watch way too much T.V., I was sick last week.)

I guess these corporations know what they’re doing.  They conduct market research test groups, right?  All I’m saying is that if I did need to buy diapers, I’d be sure to avoid the brand with the cartoon babies.

Have Power Chair … Will Travel

I am SICK TO DEATH of bumming rides.  (Okay, I know it’s a cliche’, but I can’t think of anything original.  Fellow writers, help me out here.)  Since I don’t drive, I’m forever asking favors.  Do you mind and could you please take me to the drugstore/grocery store/doctor’s office?  With my mother recovering from an illness and also unable to drive, it’s really starting to wear on me (yes, another cliche’.)  One thing I’ve learned being disabled, people genuinely want to help.  It makes others feel good.  It makes me feel like an eight year old in tights being chauffeured to gymnastics.

I’ve tried relying on the public transportation available to me.  If you’ve read my memoir excerpt “Riding the Short Bus.” you know I occasionally ride JTA’s door-to-door bus service for the disabled.  It has some shortcomings.  If I schedule a 10:00-10:30 a.m. pick up to go to Publix, the earliest I can schedule a ride home is 12:00-12:30 p.m.  I could be shopping by 10:15 a.m., but not be home until 1:00 p.m. or later.  Better not get ice cream.

If you’re beach bound only, there’s also Dial-A-Ride.  I experimented with that service last week.  First, there was no answer.  This did not bode well for Dial-A-Ride.  Or for me.  Then, though I had called the required 24 hours in advance, they were all booked up.  When I picked a different day, they told me what time I would be going shopping.  I had to be available all day.  Hey, I’m disabled, right?  I have nothing better to do. Continue reading “Have Power Chair … Will Travel”

Willing to be Dazzled

This past Friday, I went to a memorial service for a woman named Rosemary Fletcher.  Because she was a dance professor, there was a beautiful performance of modern dance.  After many heartfelt words and shared memories, everyone got up and sang.  Some even shook their stuff.  Joy through tears — a wonderful emotion.  Guests were encouraged to leave with packets of wildflower seeds tied with sprigs of, what else?  Rosemary.  Is it inappropriate to say it was the best funeral I’ve ever attended?

I was touched by an excerpt of poetry read from Mary Oliver’s “The Ponds.”  It perfectly embodies how Rosemary lived her life.  It is how I hope to live mine and invite you to live yours.

Still, what I want in my life

is to be willing

to be dazzled —

to cast aside the weight of facts

and maybe even

to float a little

above this difficult world. 

I want to believe I am looking

into the white fire of a great mystery.

I want to believe that the imperfections are nothing —

that the light is everything — that it is more than the sum

of each flawed blossom rising and fading.  And I do.

In loving memory, Rosemary Susan Fletcher 1950-2011

Pet People

I’ve become one of those crazy animal ladies.  Notice I didn’t say crazy cat ladies, because, to be honest, Bella and I have never had a problem.  And Bella is just one cat.  I think you have to have four or more to be official.  Three is pushing it.  If you live with a significant other or kids, you’re safe.  Don’t ask me why.  I don’t make the rules.  No, the problem started when Frankie came to live with us.

I bought a cat condo last week so Bella would have someplace to get away from him.  I always thought they were kind of tacky.  But, like parents who say they’ll never leave toys strewn about the living room, it happens.  Out of necessity.  And for me, guilt.  Guilt for bringing a dog into the house.  So I bought what I considered to be a more tasteful one.  A ridiculous amount of money for carpet and sisal rope, it sits unused in the corner.  She hasn’t touched it.

Mealtime has become tricky too.  First, Frankie got a can of wet food because it successfully disguised medicine.  Now Bella happily munches the moist stuff too.  Again – guilt.   I couldn’t very well treat him and not her.  My apartment used to smell like eucalyptus and incense.  Now it smells like salmon and giblets.  And that’s just going in.  With the two of them lying around all day passing gas, I’ve decided the cans should come with warning labels.  Possible side effect: intense flatulence.

I’ve even found myself saying the very things I used to roll my eyes about.  Things like, “We need to set up a play date!” or “Frankie will be at doggy daycare that day.”  I used to think daycare was for spoiled little rich dogs.  Now I defend it.  “He needs to socialize with other dogs!”  I say.  I believe in the power of the pack.  I think Cesar Millan is a god.

A friend of mine has a theory about all this pet mania.  It affects those of us who’ve never had children.  Or empty-nesters.  I’ll leave this one to the mommies and daddies out there.  I’m in no position to object.  All I know is my once impeccable apartment is littered with squeaky toys and if you’re wearing black, I’d advise against sitting down.  But I make no apologies.  They’re part of the family.

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